{"id":15025,"date":"2012-02-14T17:50:54","date_gmt":"2012-02-14T16:50:54","guid":{"rendered":"http:\/\/localhost\/wp\/her-disease\/"},"modified":"2018-08-29T14:16:40","modified_gmt":"2018-08-29T13:16:40","slug":"her-disease","status":"publish","type":"post","link":"https:\/\/imagineformargo.org\/en\/her-disease\/","title":{"rendered":"Her disease"},"content":{"rendered":"<p><img loading=\"lazy\" decoding=\"async\" class=\" wp-image-3212 alignleft\" src=\"https:\/\/imagineformargo.org\/wp-content\/uploads\/margaux-bandeau.png\" alt=\"Margaux-bandeau\" width=\"101\" height=\"125\" \/> <strong>\u00ab\u00a0Hello, my name is Margaux, I am 14. <\/strong> <strong>One day, without any warning, my life has switched. I have been diagnosed an aggressive brain tumor which is called a glioblastoma (Malignant GlioNeuronal Tumor). I have now to fight every day against this thing in my head\u00a0\u00bb.<\/strong><\/p>\n<p>This is what Margaux wrote in her call for fundraising to help research in August 2009.<\/p>\n<p><strong> <br \/>\n<span style=\"color: #09a2dc;\">February 14th, 2009 <br \/>\n<\/span><\/strong>After 5 days of headaches and vomiting, we learn the terrible news. The diagnosis given by her doctor at Gustave Roussy in Villejuif is already very bleak\u00a0: glioblastoma, grade 4, inoperable, diffuse, metastases in the spine and malignant cells in the cerebrospinal fluid. Doctors say that they will try 2 sessions of chimiotherapy and after we will see\u2026 After 4 sessions of chimiotherapy, there are no more malignant cells in the cerebrospinal fluid and the tumor has slightly decreased. It is operable. Hope is back.<\/p>\n<p><span style=\"color: #09a2dc;\"><strong>June 18th, 2009<\/strong><\/span> <br \/>\nThe operation went well. About 70% of the tumor was\u00a0removed and we hope that radiotherapy will remove the rest. Against all expectations, on june 29th, only 10 days after this important operation at Necker, I take Margaux and 5 of her friends for 2 weeks of happy holidays at Barcar\u00e8s, near by Perpignan. Magic moments that she fully enjoyed before she starts 6 weeks of daily radiotherapy. Margaux looses her hair as well as sensitivity in her whole left side.<\/p>\n<p><strong><span style=\"color: #09a2dc;\">Septemper 2009<\/span> <br \/>\n<\/strong>Margaux is back to school\u00a0! She is so happy to see again her friends and teachers. No more chimiotherapy, a short break before the MRI mid-october. The MRI is good, doctors talk about remission and about a maintenance treatment. It is relieved but very careful, that we go to New York to enjoy holidays for Halloween, to see our friends from FASNY, to attend the New York marathon run by her daddy.<\/p>\n<p><strong><span style=\"color: #09a2dc;\">December 25th, 2009<\/span> <br \/>\n<\/strong>Christmas dinner at Barcar\u00e8s. And this terrible phrase \u00ab\u00a0Daddy, I see double\u00a0\u00bb\u2026 We immediately go to the hospital in Perpignan and, in connection with Gustave Roussy, they give Margaux big quantities of cortisone. Nevertheless, we go skying at Font Romeu and spend the New Year\u2019s Eve at the squirrel chalet with our friends. Margaux wants too much to go there and we want her to enjoy every possible moment.<\/p>\n<p><strong><span style=\"color: #09a2dc;\">January 4th, 2010<\/span> <br \/>\n<\/strong>Back to Paris\u00a0: she has a relapse. The disease is back, even more aggressive. A new operation at Necker and a new treatment is prescribed. All her left side is now paralysed and she has to be in a wheelchair. Nevertheless she keeps a tremendous will\u00a0to fight, she wants to carry on school to pass her \u00ab brevet\u00a0\u00bb exam, she gets a 16\/20 at the road safety test, she attends every appointment with the physiotherapist, ergotherapist, kinesiologist, through which she can stand up again and even walk a little bit by herself. She keeps on smiling, having sense of humor, and is always paying attention to others, her family, friends, relatives. The huge moment of generosity and solidarity raised by her fund collection to help Research (largest private collection on the internet in France) and all the messages that she receives, and in particular the Facebook Group \u00ab\u00a0running for Margo\u00a0\u00bb drive her to continue her fight and are a huge support. We try everything\u00a0: homeopathy, phytotherapy, magnetism&#8230;) and we contact the most famous doctors in many countries (United States, Belgium, Germany, China, Isra\u00ebl&#8230;) trying to find innovating treatments or clinical tests.<\/p>\n<p><strong><span style=\"color: #09a2dc;\">April 2010<\/span> <br \/>\n<\/strong>Margaux is getting more and more tired. Our family meeting in Antibes, then Club Med in Palmyre, \u00a0are her last holidays.<\/p>\n<p><strong><span style=\"color: #09a2dc;\">May 7th, 2010<\/span> <br \/>\n<\/strong>Back in\u00a0Gustave Roussy where we are told that nothing else can be done to stop the disease. We go back home with Margaux and organise hospitalization at home. Slowly Margaux will fall asleep, surrounded by her close family. We will accompany her with all our love until her last breath at Poissy hospital, on June <span style=\"color: #11a2dd;\">7th 2010<\/span>. \u00a0<\/p>\n","protected":false},"excerpt":{"rendered":"<p>\u00ab\u00a0Hello, my name is Margaux, I am 14. One day, without any warning, my life has switched. I have been diagnosed an aggressive brain tumor which is called a glioblastoma (Malignant GlioNeuronal Tumor). I have now to fight every day against this thing in my head\u00a0\u00bb. This is what Margaux wrote in her call for [&hellip;]<\/p>\n","protected":false},"author":12,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[184],"tags":[],"class_list":["post-15025","post","type-post","status-publish","format-standard","hentry","category-margo"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Her disease - Imagine for Margo<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/imagineformargo.org\/en\/her-disease\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Her disease - Imagine for Margo\" \/>\n<meta property=\"og:description\" content=\"\u00ab\u00a0Hello, my name is Margaux, I am 14. 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