Since the creation of the charity, Imagine for Margo assembles performers in the research area in France and Europe in order to increase public and private research investments and accelerate the access of children to innovative and potentially more effective treatments.

 

REASONS TO MOBILIZE

  • The public and private investments in the research on pediatric cancers are strongly insufficient to increase the cure rate of children suffering from this disease, while the amount of pediatric cancer has increased of 13% between 1980 and 2000.
  • The majority of children diagnosed with cancer are treated with medicine initially dedicated to adults, thus not rightly adapted to children and with limited effectiveness. These were even proven to sometimes create long-term negative side effects for cured children.
  • Between 2011 and 2015, 70 new treatments against cancer were approved for adults, in comparison to solely 2 treatments for children.
  • In Europe, only 10% of children in cancer relapse have access to innovative treatments.

 

OUR GOALS

  • Increase the investments dedicated to the research on pediatric cancer
  • Decrease the delays of opening times for clinical trials to enable ill children to access innovative and possibly more efficient treatments more rapidly.
  • Improve the European Pediatric Regulation to enable manufacturers to develop their anti-cancer molecules in pediatrics and not only in adult oncology.
  • Make children cancer a PRIORITY FOR ALL.

 

OUR MEANS FOR MOBILIZATION

IN FRANCE

  • With the GRAVIR collective, created in July 2017 and reuniting health professionals, charities of patients and parents, foundations of cancer research and movements of citizen awareness. Its primary objective is to alert the public opinion and the various stakeholders on the urgency to act faster and better, both at a diagnostic and management level, as well as the treatment level and monitoring of children and young adult cancer.
  • With the IMPACT platform, which gathers diverse charities of parents, doctors and manufacturers to collaborate towards the cause of children cancer.
  • With the FAST symposium, which we organize every year since 2014 at the Luxembourg Palace and reunites all the key players of the research dedicated to children cancer.

IN EUROPE

  • With CII – Childhood Cancer International – the largest network of associations for children cancer worldwide.
  • With SIOPE– the European Society for Paediatric Oncology, the only organization pan-european representing all the health professionals working in the sector of children and teenage cancer.
  • With Unite2Cure, of which we are founding members and reunites various association of parents in Europe.
  • With ACCELERATE, a multidisciplinary platform which gathers academics, manufacturers, regulators and associations of parents.
  • With AACR, the American Association for Cancer Research, of which Patricia Blanc is a member.

 

SEVERAL CONCRETE ADVANCEMENTS       

INCREASE OF INVESTMENTS

  • November 12, 2018: the Minister of Higher Education and Research, Frederique Vidal, announces an additional 5 million euro fund to finance the fundamental research on pediatric cancers.
  • November 29, 2018: a unanimous vote at the National Assembly for the law proposal of the deputy Natalie Elimas for a better management/treatment of pediatric cancers.

REDUCTION OF OPENING TIMES OF CLINICAL TRIALS

  • Summer 2018: creation of a team dedicated to pediatric oncology within the ANSM (French National Agency for Medicines Safety) and vote of an amended legislation regarding the French People Protection Committees in order to reduce administrative delays for opening pediatric clinical trials faster. 

REVISION OF THE EUROPEAN PEDIATRIC REGULATION

  • December 15, 2016: vote at the European Parliament of a resolution asking the European Commission to modify the Regulation of Pediatric Medicine.
  • 2017: implementation of working group with the European Commission on the pediatric regulation.
  • July 2018: definition of an action plan with the European Commission in order to better apply the pediatric regulation and avoid derogations from pediatric pharmaceutical laboratories.

A GREAT NATIONAL CAUSE IN FRANCE

  • November 29, 2018: during debates at the National Assembly on the treatment of pediatric cancers, discussions of deputies to obtain the Great National Cause for pediatric cancers in 2019.

HORIZON EUROPE

  • November 2018: childhood cancer was pre-selected among Horizon Europe’s priority missions. We are pursuing our mobilization actions with Unite2Cure to make this officially voted in the first quarter of 2019.

 

Imagine for Margo discussed at the European Commission

Imagine for Margo discussed at the European Commission

 

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